Data Management and Sharing Guidance

This document is a guide for developing the Data Management and Sharing (DMS) Plan language specific to NACC and Uniform Data Set (UDS) data for the six recommended elements of a DMS Plan. All ADRCs are required to submit a DMS Plan under the Final NIH Policy for Data Management and Sharing (NOT-OD-21-013). Each ADRC is also expected to include details for management and sharing of non-NACC and non-UDS data in their DMS Plan. Sample DMS Plans are available here.

The guidance document outlines the six recommended elements of the DMSP and is specifically tailored to NACC and Uniform Data Set (UDS) data. This valuable resource provides essential guidance on data dictionaries, metadata standardization, variable naming conventions, data quality assurance, and continuity.

This document is also available at the following DOI: 10.6069/yj7hn809