Forms and documentation

Uniform Data Set (UDS)

The shortened version of the LBD Module was implemented in 2020 and contains data collected on a subset of UDS participants. The Module is aimed at evaluating those suffering from or at risk for dementia with Lewy bodies.

Essential documents

	Initial Visit (IVP)	Follow-up Visit (FVP)

Forms Packet The full packet, containing all data collection forms. Alternatively, individual forms can be downloaded below.
Coding Guidebook The guidebooks provide detailed, annotated explanations of each form on an item-level basis, with instructions, operational definitions, and references.
Data Element Dictionary In a compact format, the DEDs list all the variables and provide a detailed description, including data type, length of field, allowable codes, and information on skip patterns and blanks.
Data Template Templates are designed to help ADRC Data Cores develop software for submitting UDS data to NACC via ASCII batch file submission.

Individual forms

	Initial Visit (IVP)	Follow-up Visit (FVP)

B1L: Clinical Symptoms and Exam
B2L: UPDRS Part II — Activities of Daily Living
B3L: UPDRS Part III — Motor Examination
B4L: Neuropsychiatric Inventory (NPI)
B5L: Mayo Fluctuations Scale
B6L: Mayo Sleep Questionnaire — Participant
B7L: Mayo Sleep Questionnaire — Co-participant
B9L: SCOPA Sleep — Co-participant
C1L: Neuropsychological Battery Scores

Neuropsychological Battery worksheets and instructions Neuropsychological Battery worksheets with stimulus pictures and instructions
D1L: Clinical DLB and PD Features
E1L: Genetics
E2L: Neuroimaging Available and FIndings
E3L: Other Labs and Findings